Sorry if the blog has taken a less philosophical bend these days and seems more practical with all my health updates. But it’s now serving a new purpose - medical log.
When I started the blog It was for the purpose of keeping my family and friends up to date. Which I guess is this post, or will be shortly. Then I started realizing it was often cathartic, then I realized it was giving me a creative outlet. And now Tracey and I use to to recall timelines, drug timing etc.
So here is the update from my Oncologist meeting today.
The big issue is that my Lipase is now up over 400 (norm 40-80) which is why I’m still dealing with pancreatic pain.
We are going to meet again in two weeks to see if levels come down as we are hopeful this situation could be due to inflammation and other effects from three procedures in just over two weeks. If it doesn’t come down, well we’ll figure it out then, most likely with another consult with the GI team.
Dr. R. wants me to attend to the pain and isn’t a fan of too many Tylenol Plus’s as the solution, so I will start adding back the hydromorph when needed. Everything else is to remain as is including the 4mg of dexamethasone daily. We want to reduce to many variable changes in the assessment.
I am meeting with the pain clinic on Friday to see the best way through this till we can identify and solve the pain source. But again, I’m hopeful it’s a recuperation thing.
Oh, and that was a month of a chemotherapy holiday I just took - I’m starting back on Cabozantinib tomorrow.
I kinda feel ripped off again, every time I take a chemo break something happens and doesn’t allow me the full refresh. Maybe it’s a sign that I should just stick with the Cabo and be happy it’s doing its job.
Maybe he meant Cabo, Mexico. Maybe he meant Cabozantinib. Time will tell.